What Not to Do When Someone You Love Is Psychotic

There have been a couple of disturbing news reports lately about terrible crimes committed by people in psychotic states, including the actor Michael Brea’s savage murder of his mother and a Seattle killing that took place in front of school children.

Although it’s been proven that people with mental illness are more likely to be victims of violence than perpetrators of it, these reports underscore the fact that untreated psychosis can lead to tragedy.

It’s imperative, then, that you do everything you can to get your loved one the help he or she needs.

When John became psychotic due to a manic episode that escalated into psychosis, I learned a few hard lessons about what not to do when you’re trying to help a loved one beat this frightening illness.

I Love My Husband #743

John and I were playing cards the other day*. After losing a hand in a somewhat distracted manner, he turned to me and said, “I was daydreaming about teaching Mini Whistler about engineering.”

My sweet husband is going to make an awesome dad!

*We play cards a lot. Lately I’ve been losing. I blame it on baby brain.

Stupid Things People Say about Mental Illness

My father has never been big on expressing emotion, particularly uncomfortable emotion. He’s also the kind of guy who, when playing cards, “knows what’s in everybody’s hand.”

His reaction to the news of my bulimia, then, was really no surprise.

I’d lost a lot of weight by crash dieting the summer before my senior year of high school, and when I went back to school and found that I could no longer stick to my starvation schedule, I tried to keep the weight from piling back on by being a lot less careful about when and where I threw up. My mother figured out what I was doing and told me she was taking me to a doctor. Later that day, while exercising in the home gym in our basement, my father made the only acknowledgment he ever made about my eating disorder when he said, “You’ve got to learn some balance.”

Umm, really, Dad? You think?

Today, with 11 years of Twelve Step recovery under my belt, I know that he was trying to be helpful. At the time, though, it was demoralizing, to say the least. I knew I needed more balance. Intellectually, I knew exactly what I needed to do to maintain a healthy weight. But that didn’t mean I could do it.

The way I thought and acted and felt around food was different from my father. We could order the exact same meal at a restaurant and he’d push his plate away before he was done saying, “I’m stuffed like a dirty pig.” I, meanwhile, would stare at him uncomprehendingly. How could he be 6’ tall and stuffed when I could eat three more plates? I had no mechanism that signaled fullness. I ate like I was bottomless pit.

His assumption, though, that I was just like him and could learn to “push myself away from the table” if I just tried harder, is where a lot of the stigma that’s associated with all types of mental illness comes from. It’s a failure of the imagination, really. An inability to imagine that someone else’s brain patterns could really be all that different from your own.

The Impact of Mental Illness on Marriage in “The Madonnas of Leningrad”

When I picked up THE MADONNAS OF LENINGRAD last week, I wasn’t expecting to read a novel about mental illness. I was expecting to read about life in Russia during WWII. I got both.

Gorgeously written, the novel shifts back and forth between the present day in America and wartime in Leningrad. But these shifts aren’t merely the author’s way of telling the story; they mirror how life is experienced by Marina Buriakov, the elderly protagonist whose Alzheimer’s disease relentlessly pulls her from the present into the past.

It seems odd to me, but I rarely hear Alzheimer’s discussed as a mental illness. Because it’s a disease that tends to strike people as they get older, there seems to be less stigma surrounding Alzheimer’s, more acceptance of it as a neurological disease than conditions like schizophrenia or bipolar disorder. (Or maybe it’s just that, in our culture, we expect older people to break down, and we don’t pay that much attention.)

But take a look at the Alzheimer’s Association’s description of the symptoms of the disease and you’ll see how closely it parallels the symptoms of psychosis:

The most common early symptom of Alzheimer’s is difficulty remembering newly learned information because Alzheimer changes typically begin in the part of the brain that affects learning. As Alzheimer’s advances through the brain it leads to increasingly severe symptoms, including disorientation, mood and behavior changes; deepening confusion about events, time and place; unfounded suspicions about family, friends and professional caregivers; more serious memory loss and behavior changes; and difficulty speaking, swallowing and walking.

Living in the past means living in another reality. That alternate reality might not be as shocking to others as an invented reality based on hallucinations and delusions—there is, after all, some basis in fact for Alzheimer’s-induced visions—but it separates people from their loved ones nonetheless.

For the spouse of someone suffering from Alzheimer’s, life becomes a lonely road.

Tetris Soothes Psychological Trauma

Every year at my dad’s office Christmas party, my sister and I would beg his secretary to let us play Tetris on her computer. We could play it on a Game Boy anytime we wanted, but that was in black and white. On her computer: glorious color.

After about the age of 13, I didn’t play Tetris for many years. In high school, Sim City was my video game of choice. In college, I discovered computerized Solitaire. A few years ago, I became obsessed with digital Scrabble.

A couple of months before John’s breakdown, I rediscovered Tetris. As I’ve mentioned in previous posts, he was working a lot, and even when he was home on the weekend, he was often obsessed with work. I needed to find things to do to occupy my time. A Web search for “free Tetris” bore fruit, so I played the occasional game here and there.

But when John went into the hospital and my anxiety was so high that I lost seven pounds in a week eating the exact same amount of food as usual (I know because I weigh and measure all my meals as part of my Twelve Step recovery), Solitaire didn’t help, Scrabble didn’t help, and I didn’t even have access to Sim City.

No, the only thing that helped calm my anxiety and prevented me from reliving the weekend prior to John’s hospitalization over and over again in my mind was a combination of mindless TV and Tetris.

In light of some new research released by Oxford University, I don’t think this was an accident.

Future Tripping about the Baby, Birth, and Bipolar

For eleven years now, I’ve recognized the benefits of taking things one day at a time, not dwelling on the past or getting lost in dreams/nightmares about the future. This was a particularly helpful practice when John was in the hospital, “floridly psychotic,”* but before anyone could give us any indication of the cause.

At that time in my life, I had to be exceedingly mindful of staying in the present, because it was easy—it was ridiculously easy—to let my thoughts wander back to the two days leading up to his hospitalization and berate myself for not catching the fact that something was amiss sooner. He’d been saying strange things all weekend, but I’d just chalked it up to stress.

It was also easy to get caught up in worry about what might be coming down the pike. Would the medications work? Would he get better? Would he be paranoid and delusional for the rest of his life?

One morning, maybe the second or third morning he was in the hospital, I got out of the shower and started to sob in the bathroom. There was a strong possibility my husband had schizophrenia, and I was terrified.

Love, Mental Illness, and Vulnerability

As a teenager, I told myself that I didn’t want marriage, I didn’t want kids, I didn’t want a family. In reality, I was afraid I’d never get them, so I tried to deny the desire, cut it off at the root before it blossomed into something I couldn’t control.

Fat, bulimic, and depressed, I didn’t think I was attractive enough to find a man. I didn’t think I was good enough to have a family. If people really knew me, I reasoned, they wouldn’t like me. Why should they? I sure as hell didn’t.

When I met John, I’d been in recovery for four years. I’d stopped doing things that made me hate myself, and I’d gone back and cleared up the wreckage from my past. I knew that I deserved good things, and I wasn’t afraid to admit I wanted them.

It sounds cheesy, but I was ready to fall in love.

When John and I married three years later, I spent the day in a blaze of happiness. I felt blessed, and I prayed only that, whether John and I experienced times of joy or heartache, our love and commitment to each other would remain strong and be used as a foundation to help others.

I never imagined that bipolar disorder would be God’s answer to my prayer.